Show Me Your Disease Thread

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Bribie G

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Share your intimate health problems here - the health system doesn't G.A.F. whether you live or die, but fellow AHB members may know remedies and it's good to get it off your chest (if you still have one)

:rolleyes:

Moderate plaque psoriasis
this is an autoimmune syndrome so I also get:

Intermittent gout (I take allipurinol which keeps it quiet)
A surprise attack of anterior uveitis, typically triggered by psoriasis, which is also settled down thanks to the Royal Bris Hospital eye unit

Uncontrolled farting, probably related to beer :icon_drunk:

Cures: psoriasis does great with sunbaking and swimming in the sea so, therefore, gets worse in the winter.
 
i have couldn'tgiveafuckitis.
Thats so sad, mabee you can get a prosthetic so you can :rolleyes:


Moderate plaque psoriasis
this is an autoimmune syndrome so I also get:

Cures: psoriasis does great with sunbaking and swimming in the sea so, therefore, gets worse in the winter.

I got my first bad case of psoriasis 9 months ago. I appeared on my foot between my big toe and the next toe. The GP's thought it was tinea and I have been using creams and even a course of tablets for 5 weeks that I couldnt drink beer while taking because the tabs are so hard on the liver that any boose would over stress the liver and cause a liver failure. I eventually went to another gp who wanted to prescribe me another brand of tablets, but when I refused and demanded a referral to a specialist he got quite aggressive. So I saw a dermatologist a couple of weeks ago who said it was psoriasis!

I got a script for a cream consisting of 6% LPC (which is tar and slows the growth of the skin cells), 2% salicylic acid (which causes the skin to peel), all in a sorbolene cram base.

I have used this before and has worked great but didnt have a sorbolene base and was just tar with 2% acid, and it stunk much much worse, but it did work. So 2 weeks in and its heaps better, another 2 weeks and it should be gone.

Also got some 'Desowen' which is a strong topical steroid that also works great especially on the face as it doesnt smell and is not light sensitive.

My mum had plaques all over her body. Se has been undergoing Ultra Violet therapy where she goes to a hospital every day and stands in a room with special lights for 1 minute. The specific wavelength of light helps. It has helped her heaps. But it is only available in capital cities due to the cost of the setup and it needing to be overseen by a dermatologist. It does carry higher chance of skin cancer though.

I've also had 100% sucess on my scalp by shaving it with a razor blade twice a week at first then once a week, then once a month. Or when I do have hair, having a shower at night, then leave the hair quite wet and rub in heaps of moisturiser like sorbolene and leaving in overnight. Makes you look like norman gungstan while its in, but it works pretty well after a couple days. Thats one that I figured out myself, and have since seen reference on proper sites to moisturiser content being attributed to 'so called miracle cures' marketed on the internet.

Its a very common condition 1 - 2% and is genetic - past down from parents. It has been described to me as where the skin grows about 3 times faster than it should. But it does seem to be an alergy, but it is not yet known to what, so normal desensitisation injections used to treat most alergies havent worked as yet. Scratching or skin abrasians can be a starting cause though. Mine on my foot appeared soon after walking along the beach after putting on socks and shoes while my feet were still wet and the inside of my toes were covered in sand - the sand abraised the skin between the toes. Being awake for 36 hours and having consumed 36 stubbies had nothing to do with it.

Some links a found a couple of weeks ago:
http://www.dermcoll.asn.au/public/a-z_of_skin-psoriasis.asp
http://home.vicnet.net.au/~psorias/
http://lifewithpsoriasis.com.au/?page_id=180
http://home.vicnet.net.au/~psorias/include...ey_Findings.pdf


I have been planning a little survey of psoriasis suffers to try to learn more about what causes it. I have some theories. Its a little ways off, but pm me if you can take part.
 
Factor V Leiden which is a genetic blood disorder. Causes increased clotting. 1 in 30 people have it but most wouldn't know. I'm a stupid ******* for getting tested after some other family members said they had it. Now I take a small aspirin daily and get the priviledge of paying life insurance premiums that have doubled because stupid underwriters don't/won't comprehend that it will most likely never affect me.
 
No confirmed diagnosis, however I do suffer a set of cyclical symptoms:
- Inability to concentrate
- Decreased gross motor functionality
- Blurred vision
- Incomprehensible speech
- Partial amnesia
- Mistaken belief I can dance, and am irresistible to the ladies
Usually occurs of a Fri/Sat evening
 
Must be something going round, I've felt like that some nights lately
 
Thats so sad, mabee you can get a prosthetic so you can

maybe you could design me one after you make some beer on the FABS, not sure if I'm prepared to wait 27 years though.
 
I suffer from hangovers, but haven't seen a doctor - my research is continuing.
 
I had a nasty case of shingles down the left side of my face a couple of years ago. Doc missed the initial diagnosis and sent me home with panadol..
He's no longer our GP..

Worst ******* pain and malaise I've ever felt in my life. I was basically subsisting on antibiotics the size of small football's, panadine forte and sips of water. I spent a week in bed in a darkened room as light produced headaches akin having a cattle prod applied to your forehead.
Even today when I'm getting a little run down, my left eye starts feeling droopy and lidded. I expect to look in the mirror and see Thom Yorke. It actually doesn't move, the optometrist say's its probably a little nerve damage - good, cos that dudes freaky lookin - cool band though..

Took a month to get back on my feet and a little longer for the scars to heal. Fortunately they only added character to my chiseled good looks..

This shit is nasty enough to leave you sterile, but we've had a child since then - if I count back the weeks, on virtually our second go - so luckily my kung fu is still strong.
They say the incidence of recurrence is fairly rare, but the virus lives in your spine so you're never rid of it. This makes me glad, as I'd sooner detox from a meth habit or appear as contestant on some afternoon TV quiz show than go through that shit again.
 
I had a nasty case of shingles down the left side of my face a couple of years ago. Doc missed the initial diagnosis and sent me home with panadol..
He's no longer our GP..

Worst ******* pain and malaise I've ever felt in my life. I was basically subsisting on antibiotics the size of small football's, panadine forte and sips of water. I spent a week in bed in a darkened room as light produced headaches akin having a cattle prod applied to your forehead.
Even today when I'm getting a little run down, my left eye starts feeling droopy and lidded. I expect to look in the mirror and see Thom Yorke. It actually doesn't move, the optometrist say's its probably a little nerve damage - good, cos that dudes freaky lookin - cool band though..

Took a month to get back on my feet and a little longer for the scars to heal. Fortunately they only added character to my chiseled good looks..

This shit is nasty enough to leave you sterile, but we've had a child since then - if I count back the weeks, on virtually our second go - so luckily my kung fu is still strong.
They say the incidence of recurrence is fairly rare, but the virus lives in your spine so you're never rid of it. This makes me glad, as I'd sooner detox from a meth habit or appear as contestant on some afternoon TV quiz show than go through that shit again.


Had this too when I was 20. Caught it in the first 24 hours, and the meds sorted it out very quickly. Not a nice disease....
 
Had shingles last year, but my case was relatively mild, and only affected one side around the mid rib area. Did feel like crap for a while, but wasn't bad enough to give up golf.

Apparently, if the shingles are caught within the first 3 days of symptoms appearing, then anti-biotics work well to knock it on the head. If you miss that window, it's a case of toughing it out.

I do have an auto-immune disease, Wegener's Granulomatosis, diagnosed about 12 years ago.
Fortunately, that's in remission, but when it's full blown it's nasty.


Edit: whatever you think needed editing wasn't it.
 
Had this too when I was 20. Caught it in the first 24 hours, and the meds sorted it out very quickly. Not a nice disease....

Like I said.

He's no longer our GP.

Although he did offer me acupuncture..
 
I went 3 rounds with cancer about 10 years ago, then to top it off copped a rather large blood clot in my head 2 yrs ago. All good now though.

Cheers SJ
 
i have couldn'tgiveafuckitis.
Thats so sad, mabee you can get a prosthetic so you can :rolleyes:
Sorry Yardy, still not sure what you have, but I thought you were bagging the thread. Obviously not.

I got Keratonus which is where the front of the eye (cornea) slowly becomes more pointed than round causing deteriating eyesight. When I look at the moon, I see the main image, as well as an elongated transperant version extending down. Street lights also appear to have streaks.
The best thing I have found so far is to drink plenty of water. As long as I drink a few glasses of plain water a day my eyesight doesnt get fuzzy.


I also stuttered for 20 years from 12yo until last christmas. Not sure why it stopped and I hope I dont start again. I was quite stressed and angry with my neighbours at the time and stood up for my self and decided I wasnt going to take any more crap so perhaps that gave me more confidence along with the attitude of '**** with me and I will pile drive you into the ground and eat you brains for breakfast'. Its also about the time I stopped caring what anyone else thought of me - with a thread like mine you have no option but to stop caring what people think.
 
Sorry Yardy, still not sure what you have, but I thought you were bagging the thread. Obviously not.

newandimproveddancingswanp1.gif
 

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